Lately I feel like my head is full of a hive of bees that are all buzzing a warning. Warning! Something is not right! It's been getting louder and louder and now it's all I can think about. My adrenaline is up, I feel stressed out, my patience is short, it's hard to think with all the static in my head. I'm afraid. And yet I've made myself sit tight, waiting. Watching.
It's been many months of observing now, watching Megan go from sweet and happy to miserable. She is angry, frustrated, sad, unhappy. My sweet daughter has been replaced by someone I don't know, someone I don't understand, someone I can't connect to. It's hard to admit this, it feels terrible. But my BFF walked with me through autism...she listened to me for months while I vented, emoted, and obsessed before Anna's diagnosis, during the fallout after the diagnosis, and through the long process of early intervention. I knew she would listen to me again. So I told her how I feel - I don't feel like I know my own daughter, I don't know who she is, I don't feel like there is anything to do to make it better. I miss my Megan. You know what Julie told me? You said exactly those same things about Anna before she was diagnosed. It was the slap in the face that I needed.
I'm done watching and waiting. I may have waited too long...I feel like now we have a crisis at home. But if I had sounded the alarm before now, who would have believed me? All I had were my feelings...something is not right. But my feelings matter...my emotions are the barometer that measures the health of my family. Family life sucks right now, it's been getting worse and this is not normal. What I'm seeing is not autism, but it's not typical either. I've taken months to cross other possibilities off my list...typical 5 year old behavior... low blood sugar... sickness... allergies... reactions to big life transitions like moving and attending a new school. I've crossed them all off the list, I've read books, I've tried several different discipline methods and motivating strategies. Nothing has worked to alleviate Megan's distress.
After all this, you know what I'm left with? A five and a half year old little girl who is angry, frustrated and sad. She does not want to go to school. She says her school work is hard and that her favorite class is gym because she gets to run and doesn't have to do school work. She says she's tired, her tummy hurts...she employs every delay tactic she can think of to postpone going to school. She says she works really hard in school but she's sad because she can't earn a prize for good work or best behavior. She comes home after a long day of trying hard at school and she takes out her unhappiness on her family. She yells, cries, hits, picks fights, and is overly emotional for seemingly small triggers. She has everyone in the family in a tizzy and we are bound by her misery. It's been a slow progression for about a year to get to this point. It started halfway though preschool last year as the curriculum got harder. Now, two months into kindergarten, we have a situation that is not sustainable. Houston, we have a problem, and each day it is getting worse.
Yesterday I picked up the phone to make an appointment with an educational assessment center. I described a little bit of what's been going on, and I wanted to cry...I can't believe this is happening. But it is. The woman on the other end of the line knows...I could hear it in her voice. I told her I'm desperate, this cannot go on, we need some help. Megan has her first appointment in two weeks. Two weeks will be an eternity. I waited too long. Because of family history and other symptoms, such as forgetfulness, spaciness, dreaminess...I believe what we're dealing with is ADD. I don't know how to deal with ADD. Autism, yes. ADD? I have no clue. And that's not good for Megan. I want to help her, but I don't know how. I pray that the psychologist will see what I'm seeing, will hear what Megan is saying, will understand what we are feeling. I'm at the point now where I was right before Anna was diagnosed, desperate... I'm throwing in the towel. We need some help. We need it now.